22 Jul 2025 05:00
303. How will the "Big, Beautiful Bill" affect my loved one with Down syndrome?
In this current political climate, one of our goals is to keep you all up to date on the legislature that impacts our community. So friends, its time to talk about the “Big, Beautiful Bill” and how it will affect individuals with Down syndrome. We are SO grateful for an incredible guest to help us out. Sean Feely is the new Director of Advocacy and Policy at the National Down Syndrome Society and he’s here today to answer all of our questions..
- The basic questions: What exactly is the “Big, Beautiful Bill”? What exactly is medicaid?
- The complicated questions: Are home and community-funded services in danger? What are the new rules around work requirements and retroactive coverage?
- The scary questions: Will my loved one with DS lose their coverage?
We’re also asking the productive questions.. What can we do now? What sources can we trust? Grab a pen and get ready to take some notes!
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SHOW NOTES
Sign up for the National Down Syndrome Society’s newsletter HERE.
Listen to our episode with Charlotte Woodward about organ transplant discrimination HERE.
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