Rett Syndrome Today: Current Options for Symptom Management

Rett syndrome affects many organ systems, and each patient has individual symptoms and experiences—there is no “one-size-fits-all” treatment approach. In this podcast episode, Rett syndrome experts David N. Lieberman, MD, PhD, and Shannon Standridge, DO, MPH, discuss some of the more common manifestations of Rett syndrome and current management strategies. While covering manifestations such as epilepsy, behavioral issues, and gastrointestinal distress, they highlight the value of a team approach to help the patient thrive. Throughout their conversation, Drs Lieberman and Standridge weave in real-world examples of interactions they have had with families of patients with Rett syndrome and offer insights on communication strategies for different aspects of management.

Presenters:

David N. Lieberman MD, PhDInstructorDepartment of NeurologyHarvard Medical SchoolAttending PhysicianChild NeurologyBoston Children’s HospitalBoston, Massachusetts

Shannon Standridge, DO, MPHProfessorDivision of NeurologyVinaya Rett Syndrome and Related Spectrum Disorders ClinicCincinnati Children’s Hospital Medical CenterCincinnati, Ohio

This activity is supported by educational funding provided by Acadia Pharmaceuticals Inc.

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