8 Apr 2025 05:00

294. Why Down Syndrome Isn't Something to "Cure"

When we saw this headline, “CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment,” we knew we had to discuss this article together. So that’s what we’re doing today. Here’s what we’re covering in this episode:

  • The ethics of gene editing - What about other conditions with serious life-threatening effects?

  • Why do some people assume that we need to “cure” Down syndrome?

  • What would we do to alleviate some of the medical challenges in the DS community?

  • The problem with not including disabled people in this conversation

We are really digging deep today! And we invite you to read the article (linked here) and join us for this important conversation.

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SHOW NOTES

  • Read CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment

  • Keep this convo going with these past episodes: 161. Let’s Talk About Abortion & Disability; 117. Dignity Beyond Accomplishment; 99. The Last Children of Down Syndrome

    SHOUT OUT: Follow @amyjuliabecker for thoughtful discussions on hard topics in the DS community.

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